Inspire and Be Inspired
This past Monday I had the honor of making a presentation to an incredible group of special needs parents and caregivers in our community. I had been looking forward to this opportunity for months. This organization was created by a friend and pediatric nurse who witnessed a major gap in services for special needs children.
My Re-Balancing Act
As summer days’ wane, I am soaking up the time with my kiddos. I enjoy my morning Lego building with Preston. This just means I sort them by color as he makes insanely cool and perfectly engineered creations and enlightens me on his world.
Long Term Monitoring (LTM) Part 2
I believe in my heart Mikayla would not be alive if we had not found Dr. Mary Zupanc, Chair of Pediatric Neurology and the Comprehensive Epilepsy Center at CHOC Children’s Hospital.
Did You Know? Part Two
Many of you may already be aware that Mickie has a RARE Disease called Koolen-De Vries Syndrome. Tomorrow happens to be Koolen-De Vries Awareness Day. So in honor of Mickie and all of the other “Kool Kids”, I thought I would do another ‘Did You Know?’ post on Koolen-De Vries Syndrome (KDVS). Did you know […]
LTM Part 1 and Jennifer Garner
When Gabe and I were married almost seven years ago we exchanged personally written vows. I always remember his promise to me that life would always be an adventure. The last few days have lived up to his declaration. After posting my last blog entry on Saturday evening I fell asleep and woke up to […]
Vulnerability
What a whirlwind of change, growth and learning the past year has been for me. I have spent a month in reflection, creating a daily practice of meditation, yoga, reading and journaling. This has helped me balance out from the fast pace rollercoaster our family had been on. When I started this blog in February […]
Relishing The Victories
Today was a day that we never thought would happen. Our little warrior princess graduated from preschool this morning. We have been on an emotional journey with our little Mickie. Three and a half years ago we were told that she would never walk or talk. Today, we witnessed victory. She was singing and dancing […]
Did you know?
Did you know that more people live with epilepsy than with autism spectrum disorders, Parkinson’s disease, multiple sclerosis and cerebral palsy combined? Sadly, most are unaware of how prevalent epilepsy is. I experienced this firsthand soon after Mickie was diagnosed. Close friends would whisper to me that they had epilepsy. They never shared this with others. […]
Walking through the Fear
We just returned from a trip to see Mickie’s Epileptologist, Dr. Mary Zupanc, in Southern California. This trip has become our thing. Like my fellow special needs parents, I’ve become a pro at managing the hospital stays, blood draws, routine and non routine doctor appointments and multiple therapy sessions. The preparation for a clinic visit […]
Always Be Growing
Amazing things have been unfolding since my last post. Over the last few weeks we have started creating our non-profit called Mickie’s Miracles. We have been so blessed with the tremendous amount of support and good wishes we have received. I am excited that we have started the process of selecting our Board of Directors. […]
