Category: Blog

The Dravet Syndrome Foundation Offers New SAP Educational

A Seizure Action Plan (SAP) is of utmost importance if you are parenting an epileptic child. The Dravet Syndrome Foundation is hosting an SAP educational this upcoming Wednesday to help parents be prepared. After the presentation the doctors and experts will open up the panel […]

The Brain Recovery Project Is Helping Recruit For A Study

The Brain Recovery Project has three main questions for those who are considering participating in this study: Does your child have an RNS, VNS, or DBS device implanted to treat drug-resistant epilepsy? Are you considering these devices for your child as a treatment after failing […]

Mickie Will Never Be Normal — Will I?

I will never forget the day our epileptologist told us our daughter, Mickie, may never walk, talk or “be normal”. Acceptance of our new reality was a painful but necessary process. I was never embarrassed at becoming a special needs mama but my new reality […]

Warrior Baby Marlie’s Journey Through Surgery

IMG_5049 Can you imagine preparing your child for brain surgery? This is what Warrior Mama Dami went through preparing Warrior Baby Marlie for her hemispherectomy that happened on May 5th. In Dami’s words, she and Marlie were ready to “Kick epilepsy to the curb.” They […]

The Benefits of Telemedicine in Pediatrics

Telemedicine increased in popularity amidst the pandemic for a number of reasons, a key one being a reduced risk of contracting the virus. This trend has trickled down to pediatric care. The 2021 State of Pediatric Telemedicine industry survey revealed that 92% of its pediatric […]

Amelie & Albie’s Adventures

Amelie & Albie’s Adventures are on a mission to try and educate young children and their families about Epilepsy and to help spread awareness. Our Story…. Amelie had her first seizure at just 12 weeks old, and this is when our world got turned upside […]

Thankful to be part of the solution — The Power of Parents

I am full of reflection this time of year. On the heels of Epilepsy Awareness Month, while we approach a new year, I am grateful for three years of seizure freedom for my baby girl.  I am grateful to a team of doctors, nurses, epileptologists, […]

Vera

Vera Overcoming the Odds

When Vera was born she didn’t cry right away. She peacefully looked around until the nurses cleaned her up, then she wailed. We immediately saw the portwine stain across the right side of her face. We thought it was bruising from the birth. Doctors came […]

Managing Mental Health During COVID

Managing Mental Health During COVID

The National Alliance on Mental Illness (NAMI) indicates the stigma surrounding mental illness creates an environment of shame, fear, and silence that prevents many people from seeking help and treatment. There is not a single one of us who has not been impacted by COVID-19. And […]

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