Walking for Warriors

Walking for Warriors November is Epilepsy Awareness Month and our CEO and Visionary Founder Kristie Griess is #WalkingforWarriors  “Today I walk for Jane, the first warrior I supported getting to level 4 epilepsy center for proper diagnosis and treatment.” This will be the first of the #WalkingforWarriors series for Epilepsy Awareness Month.  https://youtu.be/ozmGD7ziPnc

The Pediatric Epilepsy Podcast

The Pediatric Epilepsy Podcast provides a space for conversations that are both heart wrenching, hopeful and inspiring. We’ll be talking with parents doing their best to manage their child’s epilepsy, taking on issues like mental health and the need for urgency when dealing with a diagnosis or treatment, and talking with the world’s most respected […]

Mickie’s Miracles Confronts Pediatric Epilepsy

  Mikayla ‘Mickie’ was born on October 26, 2011. She was three months old when she had her first seizure. By nine months old, she had failed over eight anti-seizure medications and was diagnosed with Intractable Epilepsy and Infantile Spasms. Each month that passed, she fell further and further behind her peers in development. I […]

We Will Miss You Warrior Landon!

We are absolutely heartbroken by the loss of Warrior Landon. Our prayers go out for his sweet soul and his beautiful family — Warrior Mama Julie, Warrior Dad Mark, and his Warrior Sis Callie. We know loss of life is part of our earthly experience and yet Landon’s unexpected and tragic loss has hit us […]

The Dravet Syndrome Foundation Offers New SAP Educational

A Seizure Action Plan (SAP) is of utmost importance if you are parenting an epileptic child. The Dravet Syndrome Foundation is hosting an SAP educational this upcoming Wednesday to help parents be prepared. After the presentation the doctors and experts will open up the panel for questions. The experts include the following people: Elaine Wirrell, […]

The Brain Recovery Project Is Helping Recruit For A Study

The Brain Recovery Project has three main questions for those who are considering participating in this study: Does your child have an RNS, VNS, or DBS device implanted to treat drug-resistant epilepsy? Are you considering these devices for your child as a treatment after failing anti-epileptic medication? Or has your child had unsuccessful epilepsy surgery, […]

Mickie Will Never Be Normal — Will I?

I will never forget the day our epileptologist told us our daughter, Mickie, may never walk, talk or “be normal”. Acceptance of our new reality was a painful but necessary process. I was never embarrassed at becoming a special needs mama but my new reality came with insecurities and worries of my daughters emotional welfare. […]

Warrior Baby Marlie’s Journey Through Surgery

IMG_5049 Can you imagine preparing your child for brain surgery? This is what Warrior Mama Dami went through preparing Warrior Baby Marlie for her hemispherectomy that happened on May 5th. In Dami’s words, she and Marlie were ready to “Kick epilepsy to the curb.” They spent the days before Marlie’s surgery cuddling and spending quality […]

The Benefits of Telemedicine in Pediatrics

Telemedicine increased in popularity amidst the pandemic for a number of reasons, a key one being a reduced risk of contracting the virus. This trend has trickled down to pediatric care. The 2021 State of Pediatric Telemedicine industry survey revealed that 92% of its pediatric physician respondents believe virtual care will remain favored by patients even after […]

Amelie & Albie’s Adventures

Amelie & Albie’s Adventures are on a mission to try and educate young children and their families about Epilepsy and to help spread awareness. Our Story…. Amelie had her first seizure at just 12 weeks old, and this is when our world got turned upside down. For me this was the first time of witnessing […]