Aloha for Awareness
In Memory of Freddy Hernandez
About Freddy
Freddy Joseph Hernandez loved life. He had an infectious laugh and was known best for his giving, loyal and kind personality. He was the person everyone could call if they had a bad day to get support, hugs or a good laugh.
One day, when Freddy was 19, he experienced what we thought was just a fainting spell. About 9 months later, we would come to witness a grand mal seizure. That day changed all of our lives forever. The next 5 years were spent at endless doctor’s appointments and emergency room visits where he was provided various medications and underwent a multitude of tests.
Finally, after a couple years, it happened. As he began his testing and treatment, it was discovered he was over-medicated and adjustments to medication started again, along with the horrible side effects that go with it. However, we had hope — and the. suddenly a few months later, Freddy experienced what we have been told was SUDEP (sudden unexplained death of epilepsy patients). We lost this wonderful, strong soul 5 days before his 26th birthday in June 2016.
For Freddy, he never had a bad outlook on life, nor let the fear of having a seizure change his personality. If he was still with us today, he would be sharing his positive outlook and love for life with others. Because he is not here, we remember and honor him and hope to increase awareness of the dangers and threats of epilepsy. His life fulfilled a purpose — and part of the purpose is inspire others to seek support.
About Mickie's Miracles
Mickie’s Miracles advocates for parents to get their child an urgent diagnosis and the highest level of care at Level IV Pediatric Epilepsy Centers, increases awareness about the catastrophic dangers of pediatric epilepsy, and fights for legislative change to reduce barriers to care and research funding.
