Mickie’s Miracles Blog

Follow our blog for stories from the perspective of an Epilepsy mom, news of Mickie’s Warriors and Educational pieces from industry professionals.

The Dravet Syndrome Foundation Offers New SAP Educational

The Dravet Syndrome Foundation Offers New SAP Educational

A Seizure Action Plan (SAP) is of utmost importance if you are parenting an epileptic child. The Dravet Syndrome Foundation is hosting an SAP educational this upcoming Wednesday to help parents be prepared. After the presentation the doctors and experts will open up the panel for questions. The experts include the following people: Elaine Wirrell, MD Director of Pediatric Epilepsy and Professor of Neurology Mayo Clinic Kathy O’Hara, RN Child Neurology Virginia Commonwealth University Shelly Meitzler Epilepsy Mom and Community Programs Manager, East TSC Alliance Christie L. Van Cleave Epilepsy Mom, ...
The Brain Recovery Project Is Helping Recruit For A Study

The Brain Recovery Project Is Helping Recruit For A Study

The Brain Recovery Project has three main questions for those who are considering participating in this study: Does your child have an RNS, VNS, or DBS device implanted to treat drug-resistant epilepsy? Are you considering these devices for your child as a treatment after failing anti-epileptic medication? Or has your child had unsuccessful epilepsy surgery, and now you’re considering a device? If you’ve answered yes to these questions, please go to the following link at https://www.brainrecoveryproject.org/2021/06/16/understanding-the-decision-making-process-around-rns-vns-and-dbs/ and read the full invitations (available in English, ...
Mickie Will Never Be Normal — Will I?

Mickie Will Never Be Normal — Will I?

I will never forget the day our epileptologist told us our daughter, Mickie, may never walk, talk or “be normal”. Acceptance of our new reality was a painful but necessary process. I was never embarrassed at becoming a special needs mama but my new reality came with insecurities and worries of my daughters emotional welfare. Would she be accepted? Would they bully her? Can they understand what she’s trying to communicate? Every parent worries but it was amplified because that’s ...
Warrior Baby Marlie's Journey Through Surgery

Warrior Baby Marlie’s Journey Through Surgery

IMG_5049 Can you imagine preparing your child for brain surgery? This is what Warrior Mama Dami went through preparing Warrior Baby Marlie for her hemispherectomy that happened on May 5th. In Dami’s words, she and Marlie were ready to “Kick epilepsy to the curb.” They spent the days before Marlie’s surgery cuddling and spending quality time. Then on the eve of the surgery, May 4th, Marlie underwent an early morning MRI. The next day was it was GO TIME! The next day ...
The Benefits of Telemedicine in Pediatrics

The Benefits of Telemedicine in Pediatrics

Telemedicine increased in popularity amidst the pandemic for a number of reasons, a key one being a reduced risk of contracting the virus. This trend has trickled down to pediatric care. The 2021 State of Pediatric Telemedicine industry survey revealed that 92% of its pediatric physician respondents believe virtual care will remain favored by patients even after the pandemic. This is in stark contrast to pre-pandemic data when less than 10% of pediatricians offered virtual visits; at the time, telemedicine wasn’t an ...
Amelie & Albie's Adventures

Amelie & Albie’s Adventures

Amelie & Albie’s Adventures are on a mission to try and educate young children and their families about Epilepsy and to help spread awareness. Our Story…. Amelie had her first seizure at just 12 weeks old, and this is when our world got turned upside down. For me this was the first time of witnessing a seizure, and at this point I didn’t even know that this is, what was actually happening. Amelie’s oxygen levels would drop, and her skin would turn ...

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