Mickie’s Miracles Blog

Follow our blog for stories from the perspective of an Epilepsy mom, news of Mickie’s Warriors and Educational pieces from industry professionals.

My Re-Balancing Act

As summer days’ wane, I am soaking up the time with my kiddos. I enjoy my morning Lego building with Preston. This just means I sort them by color as he makes insanely cool and perfectly engineered creations and enlightens me on his world.

Did You Know? Part Two

Many of you may already be aware that Mickie has a RARE Disease called Koolen-De Vries Syndrome.  Tomorrow happens to be Koolen-De Vries Awareness Day.  So in honor of Mickie and all of the other “Kool Kids”, I thought I would do another ‘Did You Know?’ post on Koolen-De Vries Syndrome (KDVS). Did you know that 1 in 16,000 people are born with Koolen-De Vries?  It is considered a RARE Disease.  There are only approximately 20,000 individuals with KDVS.  According to ...

LTM Part 1 and Jennifer Garner

When Gabe and I were married almost seven years ago we exchanged personally written vows. I always remember his promise to me that life would always be an adventure. The last few days have lived up to his declaration. After posting my last blog entry on Saturday evening I fell asleep and woke up to a loud explosion outside our home. I ran down the stairs to find a car had hit both of our vehicles and flipped over in ...

Vulnerability

What a whirlwind of change, growth and learning the past year has been for me. I have spent a month in reflection, creating a daily practice of meditation, yoga, reading and journaling.  This has helped me balance out from the fast pace rollercoaster our family had been on. When I started this blog in February I declared I would use it to document my journey as a Pediatric Epilepsy and RARE disease advocate. In some ways I feel I wasn’t ...

Relishing The Victories

Today was a day that we never thought would happen.  Our little warrior princess graduated from preschool this morning.  We have been on an emotional journey with our little Mickie.  Three and a half years ago we were told that she would never walk or talk.  Today, we witnessed victory.  She was singing and dancing along with her classmates.  As an advocate, I want all parents of special needs children to experience the victories.  I want to help ensure that ...

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