Kristie on our Contributor:
Hilary Harris is a pastor at The Fathers House in Vacaville, Ca. where her husband Rich is also a Worship Pastor. Their lives were changed when their first daughter Jane was born. Jane lives with epilepsy, blindness, immobility and special needs. It is Hilary’s desire to share their story through writing and speaking, to bring hope, healing and laughter to others who have faced disappointment and tragedy. It is such an honor to watch Hilary preach. Her self-deprecating humor and authenticity shines through and makes you feel like her message was crafted just for you. I have the utmost respect for the grace with which she has shepherded her family through the wake and devastation Infantile Spasms has caused. To learn more about Hilary, check out her blog at hilaryharris.org.
On January 11th, 2014, our dreams came true and I naturally delivered a healthy baby girl named Jane. Jane means “God has been gracious”. After two days in the hospital, we brought home our healthy baby.
The details of what took place after we brought Jane home are some that will never leave my memory. After a full day at home, we brought Jane to the hospital for her routine newborn check-up. After assessing Jane and taking her temperature, the nurse assisting us quickly left the exam room and returned with a very concerned looking Doctor in blue scrubs.
As calm as she could, the doctor began to ask us several questions. “When was the last time she peed? Has she experienced any head trauma at home? How long has she been like this?” All I could think was, “I have known this child for about 72 hours, you tell me!” Obviously, that is not what I said and instead answered all her questions, very aware that the tension growing in the room was palpable.
After our very brief, extremely fast pop quiz, the doctor told us as kindly as possible, words that still send a lump to my throat, “your baby does not look good”. On that note, Jane was stripped down from her pajamas that I had so thoughtfully picked out, placed on an exam cart and rushed by clinic staff, with my husband following, to the adjoining emergency room. At that moment, I was not sure if I would be bringing my daughter home ever again.
For reasons still unexplained, Jane’s blood sugar upon admittance was almost unreadable, and during that time she had been experiencing several seizures. But she was alive. She would be taken by ambulance to the nearest intensive care unit which happened to be 45 minutes away. Jane had undergone a traumatic brain injury due to low blood sugar, possibly caused by a condition called hyperinsulinism, which soon resolved itself. This injury, however, had left her with sporadic and intractable seizures, meaning they cannot be controlled, and which we would later learn, are permanent. Our newborn’s first days of life would not include beach trips and photo shoots, but rather feeding tubes, IV lines, blood transfusions, and medications.
After one month in ICU we were released to take Jane home. She was on an anti-seizure medication and one blood sugar medication, but otherwise happy and healthy.
At six months old, her seizures returned despite her anti-seizure medicine. Her seizures were growing more frequent and more powerful. Yet every time we called to report this activity they were deemed, “not an emergency”. Regrettably, Jane’s seizures were left untreated, causing permanent damage including blindness and cognitive delay.
Thanks to the efforts of Mickie’s Miracles, when Jane was one year old, we were directed to a children’s hospital that specializes in pediatric epilepsy. After only 24 hours in their facility, Jane was diagnosed with Infantile Spasms and given a medicine that controlled her spiraling seizures. They were also able to facilitate extensive tests that gave us answers we had been searching for over six months.
Jane is almost four years old and making progress despite her intractable epilepsy. She was put on the ketogenic diet and we are seeing positive progress. Jane is overwhelmingly strong and brave. She is beginning to speak again, is strong in her muscles and doing well in school. She has become more receptive to tactile exploration and more socially adaptable. We are so thankful for every miracle along the way in our unexpected journey
Praise the Lord!
Greetings! Quick question that’s entirely off topic.
Do you know how to make your site mobile friendly? My website looks
weird when browsing from my iphone 4. I’m trying to find a
theme or plugin that might be able to correct this issue.
If you have any suggestions, please share. Appreciate it!
Hello, I do think your blog may be having internet browser compatibility problems. When I look at your website in Safari, it looks fine however, if opening in IE, it has some overlapping issues. I simply wanted to provide you with a quick heads up! Aside from that, wonderful site!
You should take part in a contest for one of the highest
quality sites on the net. I’m going to highly recommend this blog!
Hi, just wanted to say, I loved this post. It was practical.
Keep on posting!
Thanks a lot for sharing this with all of us you really recognise
what you are talking about! Bookmarked. Kindly
also discuss with my web site =). We may have a link alternate arrangement between us
Quality posts is the important to attract the viewers to pay a
quick visit the website, that’s what this website is providing.
Hi there, I log on to your blog like every week. Your writing style is witty, keep up the good
work!
Woah! I’m really loving the template/theme of this website.
It’s simple, yet effective. A lot of times it’s
very difficult to get that “perfect balance” between user friendliness and visual appearance.
I must say you’ve done a very good job with this. In addition,
the blog loads extremely fast for me on Safari. Superb Blog!
I pay a quick visit every day a few web pages and websites to read articles, except this website presents quality based posts.
Hmm it appears like your site ate my first comment (it was super long) so I guess I’ll just
sum it up what I wrote and say, I’m thoroughly enjoying your
blog. I as well am an aspiring blog writer but I’m still new to everything.
Do you have any recommendations for first-time blog
writers? I’d genuinely appreciate it.
Wow that was odd. I just wrote an really long comment but after I clicked submit my
comment didn’t show up. Grrrr… well I’m not writing all that
over again. Anyway, just wanted to say excellent blog!
If you are going for finest contents like me, just visit this
website every day since it offers quality contents, thanks
Your method of describing the whole thing in this paragraph is actually pleasant, all be capable of simply
know it, Thanks a lot.
Hi there, I enjoy reading all of your article post.
I wanted to write a little comment to support you.
It’s really very complex in this busy life to
listen news on Television, thus I only use web for that
reason, and obtain the most up-to-date information.
I used to be able to find good advice from your content.
This website was… how do you say it? Relevant!!
Finally I have found something which helped me. Thanks a lot!
Hi there to every one, it’s really a pleasant for
me to pay a visit this web page, it consists of helpful Information.
This website was… how do I say it? Relevant!! Finally I have found something
that helped me. Appreciate it!
Simply desire to say your article is as amazing.
The clearness in your post is simply great and i could assume you’re an expert on this subject.
Fine with your permission allow me to grab your RSS feed to
keep up to date with forthcoming post. Thanks a million and please carry on the enjoyable work.
Every weekend i used to visit this website, because i wish for enjoyment, since this this site conations truly
pleasant funny material too.
Wonderful, what a website it is! This web site gives valuable facts to us, keep it up.
Great delivery. Sound arguments. Keep up the good spirit.
I just could not depart your website prior to suggesting that
I extremely loved the standard information a person supply on your visitors?
Is going to be back incessantly to inspect new posts
Very good post! We are linking to this great post on our site.
Keep up the good writing.
Hey there just wanted to give you a quick heads up and let you know a few of the pictures aren’t loading properly.
I’m not sure why but I think its a linking issue.
I’ve tried it in two different browsers and both show the same results.
Have you ever thought about adding a little bit more than just your articles?
I mean, what you say is fundamental and all. But just imagine if you added some great images or video clips
to give your posts more, “pop”! Your content is excellent but with images and videos, this site could undeniably be one of the
most beneficial in its niche. Terrific blog!
A person necessarily lend a hand to make critically articles
I might state. This is the very first time I frequented your
website page and so far? I surprised with the
research you made to make this actual post incredible.
Wonderful activity!
I like the helpful info you provide in your articles. I’ll bookmark
your weblog and check again here regularly. I am
quite sure I will learn lots of new stuff right here!
Best of luck for the next!
At this time I am ready to do my breakfast, afterward having my breakfast coming again to read additional news.
Thank you for every other great article. The place else could anybody get that type of information in such a perfect means of
writing? I have a presentation next week, and I am on the look for such info.
Howdy! I know this is somewhat off-topic however I needed to ask.
Does operating a well-established website such as yours take a massive amount work?
I’m brand new to writing a blog however I do write in my journal on a daily basis.
I’d like to start a blog so I can easily share my personal
experience and feelings online. Please let me know if
you have any recommendations or tips for brand new aspiring blog owners.
Appreciate it!
Thank you for some other informative web site. Where else may
just I am getting that type of info written in such a perfect way?
I have a mission that I am just now working on, and I have
been on the look out for such info.
I have to thank you for the efforts you’ve put in penning
this site. I am hoping to view the same high-grade blog posts by you in the future as well.
In fact, your creative writing abilities has inspired me to
get my own site now 😉
I am truly happy to glance at this blog posts which consists of tons of valuable
facts, thanks for providing these kinds of data.
I have read some just right stuff here. Definitely value bookmarking for revisiting.
I surprise how much effort you set to make the sort of great informative website.
I’m truly enjoying the design and layout of your site.
It’s a very easy on the eyes which makes it much more enjoyable for me to come here and
visit more often. Did you hire out a designer to create your theme?
Outstanding work!
Everything is very open with a very clear description of the issues.
It was really informative. Your site is very helpful. Many thanks
for sharing!
Hello excellent website! Does running a blog such as this require a
massive amount work? I’ve very little understanding of computer programming
but I was hoping to start my own blog in the near future.
Anyways, if you have any suggestions or tips for new blog owners please share.
I understand this is off subject but I simply had to ask.
Many thanks!
Oh my goodness! Impressive article dude! Thank you so much, However I am going through issues with your RSS. I don’t know why I cannot subscribe to it. Is there anyone else getting the same RSS problems? Anybody who knows the solution will you kindly respond? Thanx!!
I visited various web sites however the audio quality for audio songs present at this site is genuinely excellent.
Im obliged for the article. Fantastic.
I gotta favorite this site it seems very beneficial handy
My website: порнуха на русском
As a Newbie, I am always searching online for articles that can help me. Thank you
My website: российский секс
Wohh precisely what I was searching for, regards for putting up.
My website: трахают студенток
As a Newbie, I am continuously exploring online for articles that can be of assistance to me.
My website: жесткое изнасилование
Thank you ever so for you blog. Really looking forward to read more.
My website: трахают студенток
This site definitely has all of the information I needed about this subject
My website: секс студентов
Ponto IPTV a melhor programacao de canais IPTV do Brasil, filmes, series, futebol
My website: порно училки русское
Definitely, what a great blog and revealing posts, I definitely will bookmark your site. Best Regards!
My website: рус порно
You need to be a part of a contest for one of the greatest websites
on the internet. I most certainly will recommend this web site!
Obecnie technologia pozycjonowania jest szeroko stosowana. Wiele samochodów i telefonów komórkowych ma funkcje pozycjonowania, a także wiele aplikacji do pozycjonowania. Gdy zgubisz telefon, możesz użyć takich narzędzi do szybkiego zainicjowania żądań śledzenia lokalizacji. Zrozumieć, jak zlokalizować telefon, jak zlokalizować telefon po jego zgubieniu?
Major thanks for the article post. Much thanks again.
My website: русское порно видео
A lot of blog writers nowadays yet just a few have blog posts worth spending time on reviewing.
My website: порно износ
Respect to post author, some fantastic information
My website: порно студенты
As a Newbie, I am always searching online for articles that can help me. Thank you
My website: порно русских женщин с неграми
Definitely, what a great blog and revealing posts, I definitely will bookmark your site. Best Regards!
My website: смотреть семейное порно
Please let me know if you’re looking for a article author for your site.
You have some really great articles and I think I
would be a good asset. If you ever want to take some of the
load off, I’d absolutely love to write some material for your blog
in exchange for a link back to mine. Please blast me an e-mail if interested.
Thank you!
A round of applause for your article. Much thanks again.
My website: красивый сквирт
My website: смотреть красивые сиськи
Respect to post author, some fantastic information
My website: сексвайф кончает
I got what you intend,bookmarked, very decent website.
My website: мохнатая пизда
This site definitely has all of the information I needed about this subject
My website: смотреть порно рыжая девушка
It’s going to be end of mine day, except before ending I am reading this
great paragraph to increase my knowledge.
This site definitely has all of the information I needed about this subject
My website: порно лижет пизду
Las Atlantis promo codes nable customers to get over 50 to 200
free oof charge spins.
my web-site :: 우리카지노
I’m extremely pleased to discover this website. I wanted to thank you for ones time just for this fantastic read!
My website: порно первый анал
Wohh precisely what I was searching for, regards for putting up.
My website: порнуха мать
I reckon something truly special in this website.
My website: порно девушка с большой жопой
My website: очень красивый секс
I got what you intend,bookmarked, very decent website.
My website: Упругие сиськи
Respect to post author, some fantastic information
My website: дрочка в домашних условиях
Możesz także dostosować monitorowanie dla niektórych aplikacji i natychmiast rozpocznie regularne przechwytywanie migawek ekranu telefonu.
I’m extremely pleased to discover this website. I wanted to thank you for ones time just for this fantastic read!
My website: секс мама трахает
Definitely, what a great blog and revealing posts, I definitely will bookmark your site. Best Regards!
My website: русское порно со зрелыми
Thanks-a-mundo for the post.Really thank you! Awesome.
My website: писсинг женщин
I am incessantly thought about this, thanks for posting.
My website: секс порно бдсм
Thank you ever so for you blog. Really looking forward to read more.
My website: секс во время массажа
Ponto IPTV a melhor programacao de canais IPTV do Brasil, filmes, series, futebol
My website: смотреть сквирт
A round of applause for your article. Much thanks again.
My website: порно снял проститутку
This site definitely has all of the information I needed about this subject
My website: самые лучшие жопы
I’m extremely pleased to discover this website. I wanted to thank you for ones time just for this fantastic read!
My website: женщины глотают сперму
A round of applause for your article. Much thanks again.
My website: порно с красивой казашкой
I gotta favorite this site it seems very beneficial handy
My website: красивый секс онлайн
I gotta favorite this site it seems very beneficial handy
My website: порно рука в пизде
Muchos Gracias for your article.Really thank you! Cool.
My website: порно массаж молодые
Muchos Gracias for your article.Really thank you! Cool.
My website: секс студентки
I am incessantly thought about this, thanks for posting.
My website: негр трахает в жопу
I am incessantly thought about this, thanks for posting.
My website: порно в чулках трахают жопу
I got what you intend,bookmarked, very decent website.
My website: Красивые попки
Respect to post author, some fantastic information
My website: трахает зрелую в жопу
big pharmacy online
azithromycin pharmacy
online pharmacy 365
where can i buy zithromax uk
retin a buy usa
azithromycin 500 mg generic price
I blog quite often and I truly appreciate your content. This great article has truly peaked my interest. I will bookmark your website and keep checking for new information about once per week. I subscribed to your Feed as well.
Here is my blog post :: https://www.waste-NDC.Pro/community/profile/tressa79906983/
NET88 – NET88TOP | Đường link truy cập nhà cái chuẩn NET88. Sân chơi casino đẳng cấp với dáng dấp của một trong những nhà cái casino lớn nhất Việt Nam 2024.
Website https://net88top.com/
furosemide buy online
Hi colleagues, fastidious paragraph andd nic urging commented here,
I am actually enjoying by these. https://dribbble.com/shots/23443812-The-Impact-of-Internet-Integration-on-the-Gambling-Industry
Someone essentially hekp tto make crigically posts I might
state. This is the very first time I frequented youur web page and up to now?
I amazed with the research you made to make this
particular submit amazing. Magnificent activity! https://www.quia.com/rd/359878.html
Hello it’s me, I am also visiting this web site daily, this wweb site is genuinely fastidious and the users are in fact sharing pleasant
thoughts. https://www.walkscore.com/people/284500083035/walk-score-user
Qualoity posts is the crucial too invite the people to pay a visit the wweb
site, that’s what this site is providing. https://aminoapps.com/c/essay/page/blog/how-to-read-and-analyze-betting-odds-unlocking-the-secrets-of-successful-gambling/6P3X_5aPTzuW4XjVe6dQ2vpgWzQqGbDvG1o
I think this is one of the most important info for me.
And i’m glad reading your article. But wanna remark on few general things, The web site style is ideal, the
articles is really excellent : D. Goodd job, cheers https://sourceforge.net/projects/reghuy/files/
Hi there! I know this is kinda off topic but I was wondering which bog platform are you
using for this website? I’m getfing sick and tired oof WordPress because I’ve had problems with hackrs and I’m looking aat alternatives for another
platform. I would be fantastic if you coluld point me in the direction of a good platform. https://www.walkscore.com/people/127538447471/gavin-ward
I usually do not drop a leave a response, but after looking att a few of the
remarks on Hope,Healing and Laughter – Mickie's Miracles.
I actually do have some questions forr you if you tend not to mind.
Is it only me or do a few of these responses look like they are
coming from brai dead individuals? 😛 And,if you
are posting at oother online social sites, I would like too keep up with
you. Would you list of every one of all your public sites like your twitter feed, Facebook page or linkedin profile? https://www.producthunt.com/discussions/how-is-your-weekend-going
Great items from you, man. I’ve have in mind your stuff prior to andd
you’re simply extremely magnificent. I really like what you have
acquired right here, really like what you are stating and the way by which yoou assert it.
You’re making it entertaining aand yoou continue to
ccare for to stay it sensible. I can’t wait to read far mofe from you.
This is really a terrific website. https://letterboxd.com/gretajol/list/techniques-for-controlling-gambling-habits/
If some one wants to be updated with newest technologies thereforde he musxt be visit this website
and be uup too date everyday. https://www.universe.com/users/caiden-sanchez-2Q8PKH
accutane from canada
I almost never leave responses, however i didd some searching and wound up
here Hope, Healing and Laughter – Mickie's Miracles.
And I actually do have a few questions foor you
iif you usually do not mind. Coulod it be just me or does it look as if like a few of the remarks come across like left by brain dezd folks?
😛 And, if yyou are posting att additional online social
sites, I would like to keep up with anything fresh you have
to post. Could you make a list of the complete urls
of your public sites like your twitter feed, Facebook page or linkedin profile? https://www.spiritfanfiction.com/perfil/aee2c1bee08d41c19941b6c047ffed
Greetings, I do believe your web site may be having
browser compatibility issues. When I take a look
at your blog in Safari, it looks fine however, if opening in IE, it
has some overlapping issues. I just wanted to give you a quick heads
up! Apart from that, great blog! https://sites.google.com/view/aviatorjogos/%D0%B3%D0%BE%D0%BB%D0%BE%D0%B2%D0%BD%D0%B0-%D1%81%D1%82%D0%BE%D1%80%D1%96%D0%BD%D0%BA%D0%B0
Greetings from Ohio! I’mbored at work so I decided to
browse your site onn my iphone during lunch break. I really like the info you provide here and can’t wait to take a
look when I get home. I’m surprised at how qquick yoiur blog loaded on my cell phone ..I’m
not even using WIFI,just 3G .. Anyhow, awesome blog! https://www.mindmeister.com/app/map/3129908109?t=vUQ7Fb5cLS
Hi! This is my 1st comment here so I just wanted to
give a quick shout out and tel you I truly enjoy reading your articles.
Can you suggest any other blogs/websites/forums that deal
with the same subjects? Thanks! https://scrapbox.io/aviatorjogo/As_principais_tecnologias_que_est%C3%A3o_a_mudar_a_ind%C3%BAstria_do_jogo
Keep on writing, great job! https://vocal.media/authors/aviatorgame-0zow0a61
lyrica 175 mg
buy provigil in canada
accutane 30 mg price
buy generic accutane 40 mg
purchase diflucan
baclofen cream price
clomid pharmacy
flomax online canada
accutane tablets in india
modafinil india online
best propecia prices
I9BET duoc menh danh la mot trong nhung san choi cung cap cac dich vu giai tri chuyen nghiep va uy tin. Tham gia tai I9BET cong dong game thu se duoc trai nghiem mot khong gian giai tri dat chuan dang cap quoc te.https://i9bet-vn.net/
strattera singapore
Thank you ever so for you blog. Really looking forward to read more.
My website: russkoeporno365
tretinoin 05 price
flomax generic brand
furosemide 60 mg
baclofen 20 mg price
vermox for sale
ventolin cost canada
For many content creators, blogging serves as a creative outlet where they can express themselves, share their passions, and connect with like-minded individuals Bloggers often use their platforms to tell compelling stories, share life experiences, and offer unique perspectives, fostering a sense of community among readers
baclofen cream over the counter
I reckon something truly special in this website.
My website: anilingus.tv
baclofen 10 brand name
retin a cream without prescription
real modafinil
can you buy doxycycline over the counter uk
buy azithromycin 500mg online usa
cost of generic advair diskus
It’s technical content on Hackaday Don’t get your panties in a twist over some domain specific language
where can you buy doxycycline
metformin 500 mg brand name
DA88 is an online sports betting and casino house. With a foundation of quality products and dedicated customer service, DA88 has become a trusted choice for players in Asia. Launched in 2018, the game portal with its reputation has now had more than 26 million members registered and downloaded App DA 88.https://da88.group/
Jun88 is currently the number 1 reputable betting brand in Vietnam. This house currently has a huge number of members up to 10 million people and this number continues to increase every day. However, not everyone understands the reputation and advantages that Jun88 possesses. https://www.jun88tc.com/
“I find myself getting really competitive with friends over who can get the highest score in the Dino Game!
“
88CLB là nhà cái vinh dự nhận được giấy phép hoạt động từ Isle of Man Gambling Supervision Commission, tổ chức giám sát cá cược uy tín hàng đầu trên thế giới. 88CLB được biết đến như một trong những doanh nghiệp giàu kinh nghiệm trong ngành giải trí trực tuyến ở châu Á, với gần 20 năm hoạt động. Với sự hỗ trợ vững chắc về tài chính từ Wincapital, thương hiệu này không ngừng phát triển và mở rộng bộ sưu tập trò chơi đa dạng để thỏa mãn nhu cầu ngày càng tăng của khách hàng https://88clb.luxury/
Go88 không chỉ là một cổng game đổi thưởng hấp dẫn mà còn là nơi bạn có thể tìm thấy nhiều sự kiện thú vị và cơ hội kiếm tiền thật. Từ những ưu điểm về game, dịch vụ, đến sự uy tín của nhà cái, Go88 xứng đáng là một trong những cổng game cá cược hàng đầu hiện nay. https://a-r-e-d.com
wi88 cung cấp một không gian giải trí đa dạng và an toàn, nơi bạn có thể trải nghiệm các trò chơi từ truyền thống đến hiện đại. Với nạp rút dễ dàng và bảo mật cao, Wi88 luôn mang đến cảm giác an tâm và thoải mái cho người tham gia, cùng nhiều phần thưởng đặc biệt chỉ dành riêng cho thành viên.
https://playwi88.com/