cropped-mickies-logo.png

Kristie on our Contributor:

Hilary Harris is a pastor at The Fathers House in Vacaville, Ca. where her husband Rich is also a Worship Pastor. Their lives were changed when their first daughter Jane was born. Jane lives with epilepsy, blindness, immobility and special needs. It is Hilary’s desire to share their story through writing and speaking, to bring hope, healing and laughter to others who have faced disappointment and tragedy. It is such an honor to watch Hilary preach. Her self-deprecating humor and authenticity shines through and makes you feel like her message was crafted just for you. I have the utmost respect for the grace with which she has shepherded her family through the wake and devastation Infantile Spasms has caused. To learn more about Hilary, check out her blog at hilaryharris.org.


On January 11th, 2014, our dreams came true and I naturally delivered a healthy baby girl named Jane. Jane means “God has been gracious”. After two days in the hospital, we brought home our healthy baby.

The details of what took place after we brought Jane home are some that will never leave my memory. After a full day at home, we brought Jane to the hospital for her routine newborn check-up. After assessing Jane and taking her temperature, the nurse assisting us quickly left the exam room and returned with a very concerned looking Doctor in blue scrubs.

As calm as she could, the doctor began to ask us several questions. “When was the last time she peed? Has she experienced any head trauma at home? How long has she been like this?” All I could think was, “I have known this child for about 72 hours, you tell me!” Obviously, that is not what I said and instead answered all her questions, very aware that the tension growing in the room was palpable.

After our very brief, extremely fast pop quiz, the doctor told us as kindly as possible, words that still send a lump to my throat, “your baby does not look good”. On that note, Jane was stripped down from her pajamas that I had so thoughtfully picked out, placed on an exam cart and rushed by clinic staff, with my husband following, to the adjoining emergency room. At that moment, I was not sure if I would be bringing my daughter home ever again.

For reasons still unexplained, Jane’s blood sugar upon admittance was almost unreadable, and during that time she had been experiencing several seizures. But she was alive. She would be taken by ambulance to the nearest intensive care unit which happened to be 45 minutes away. Jane had undergone a traumatic brain injury due to low blood sugar, possibly caused by a condition called hyperinsulinism, which soon resolved itself. This injury, however, had left her with sporadic and intractable seizures, meaning they cannot be controlled, and which we would later learn, are permanent. Our newborn’s first days of life would not include beach trips and photo shoots, but rather feeding tubes, IV lines, blood transfusions, and medications.

After one month in ICU we were released to take Jane home. She was on an anti-seizure medication and one blood sugar medication, but otherwise happy and healthy.

At six months old, her seizures returned despite her anti-seizure medicine. Her seizures were growing more frequent and more powerful. Yet every time we called to report this activity they were deemed, “not an emergency”. Regrettably, Jane’s seizures were left untreated, causing permanent damage including blindness and cognitive delay.

Thanks to the efforts of Mickie’s Miracles, when Jane was one year old, we were directed to a children’s hospital that specializes in pediatric epilepsy. After only 24 hours in their facility, Jane was diagnosed with Infantile Spasms and given a medicine that controlled her spiraling seizures. They were also able to facilitate extensive tests that gave us answers we had been searching for over six months.

Jane is almost four years old and making progress despite her intractable epilepsy. She was put on the ketogenic diet and we are seeing positive progress. Jane is overwhelmingly strong and brave. She is beginning to speak again, is strong in her muscles and doing well in school. She has become more receptive to tactile exploration and more socially adaptable. We are so thankful for every miracle along the way in our unexpected journey

92 Responses

  1. Greetings! Quick question that’s entirely off topic.
    Do you know how to make your site mobile friendly? My website looks
    weird when browsing from my iphone 4. I’m trying to find a
    theme or plugin that might be able to correct this issue.
    If you have any suggestions, please share. Appreciate it!

  2. Hello, I do think your blog may be having internet browser compatibility problems. When I look at your website in Safari, it looks fine however, if opening in IE, it has some overlapping issues. I simply wanted to provide you with a quick heads up! Aside from that, wonderful site!

  3. Thanks a lot for sharing this with all of us you really recognise
    what you are talking about! Bookmarked. Kindly
    also discuss with my web site =). We may have a link alternate arrangement between us

  4. Woah! I’m really loving the template/theme of this website.
    It’s simple, yet effective. A lot of times it’s
    very difficult to get that “perfect balance” between user friendliness and visual appearance.
    I must say you’ve done a very good job with this. In addition,
    the blog loads extremely fast for me on Safari. Superb Blog!

  5. Hmm it appears like your site ate my first comment (it was super long) so I guess I’ll just
    sum it up what I wrote and say, I’m thoroughly enjoying your
    blog. I as well am an aspiring blog writer but I’m still new to everything.
    Do you have any recommendations for first-time blog
    writers? I’d genuinely appreciate it.

  6. Wow that was odd. I just wrote an really long comment but after I clicked submit my
    comment didn’t show up. Grrrr… well I’m not writing all that
    over again. Anyway, just wanted to say excellent blog!

  7. It’s really very complex in this busy life to
    listen news on Television, thus I only use web for that
    reason, and obtain the most up-to-date information.

  8. Simply desire to say your article is as amazing.
    The clearness in your post is simply great and i could assume you’re an expert on this subject.
    Fine with your permission allow me to grab your RSS feed to
    keep up to date with forthcoming post. Thanks a million and please carry on the enjoyable work.

  9. Every weekend i used to visit this website, because i wish for enjoyment, since this this site conations truly
    pleasant funny material too.

  10. I just could not depart your website prior to suggesting that
    I extremely loved the standard information a person supply on your visitors?
    Is going to be back incessantly to inspect new posts

  11. Hey there just wanted to give you a quick heads up and let you know a few of the pictures aren’t loading properly.
    I’m not sure why but I think its a linking issue.
    I’ve tried it in two different browsers and both show the same results.

  12. Have you ever thought about adding a little bit more than just your articles?

    I mean, what you say is fundamental and all. But just imagine if you added some great images or video clips
    to give your posts more, “pop”! Your content is excellent but with images and videos, this site could undeniably be one of the
    most beneficial in its niche. Terrific blog!

  13. A person necessarily lend a hand to make critically articles
    I might state. This is the very first time I frequented your
    website page and so far? I surprised with the
    research you made to make this actual post incredible.
    Wonderful activity!

  14. I like the helpful info you provide in your articles. I’ll bookmark
    your weblog and check again here regularly. I am
    quite sure I will learn lots of new stuff right here!
    Best of luck for the next!

  15. Thank you for every other great article. The place else could anybody get that type of information in such a perfect means of
    writing? I have a presentation next week, and I am on the look for such info.

  16. Howdy! I know this is somewhat off-topic however I needed to ask.
    Does operating a well-established website such as yours take a massive amount work?
    I’m brand new to writing a blog however I do write in my journal on a daily basis.
    I’d like to start a blog so I can easily share my personal
    experience and feelings online. Please let me know if
    you have any recommendations or tips for brand new aspiring blog owners.
    Appreciate it!

  17. Thank you for some other informative web site. Where else may
    just I am getting that type of info written in such a perfect way?

    I have a mission that I am just now working on, and I have
    been on the look out for such info.

  18. I have to thank you for the efforts you’ve put in penning
    this site. I am hoping to view the same high-grade blog posts by you in the future as well.
    In fact, your creative writing abilities has inspired me to
    get my own site now 😉

  19. I have read some just right stuff here. Definitely value bookmarking for revisiting.
    I surprise how much effort you set to make the sort of great informative website.

  20. I’m truly enjoying the design and layout of your site.
    It’s a very easy on the eyes which makes it much more enjoyable for me to come here and
    visit more often. Did you hire out a designer to create your theme?
    Outstanding work!

  21. Everything is very open with a very clear description of the issues.
    It was really informative. Your site is very helpful. Many thanks
    for sharing!

  22. Hello excellent website! Does running a blog such as this require a
    massive amount work? I’ve very little understanding of computer programming
    but I was hoping to start my own blog in the near future.
    Anyways, if you have any suggestions or tips for new blog owners please share.
    I understand this is off subject but I simply had to ask.
    Many thanks!

  23. Oh my goodness! Impressive article dude! Thank you so much, However I am going through issues with your RSS. I don’t know why I cannot subscribe to it. Is there anyone else getting the same RSS problems? Anybody who knows the solution will you kindly respond? Thanx!!

  24. You need to be a part of a contest for one of the greatest websites
    on the internet. I most certainly will recommend this web site!

  25. Obecnie technologia pozycjonowania jest szeroko stosowana. Wiele samochodów i telefonów komórkowych ma funkcje pozycjonowania, a także wiele aplikacji do pozycjonowania. Gdy zgubisz telefon, możesz użyć takich narzędzi do szybkiego zainicjowania żądań śledzenia lokalizacji. Zrozumieć, jak zlokalizować telefon, jak zlokalizować telefon po jego zgubieniu?

  26. Please let me know if you’re looking for a article author for your site.
    You have some really great articles and I think I
    would be a good asset. If you ever want to take some of the
    load off, I’d absolutely love to write some material for your blog
    in exchange for a link back to mine. Please blast me an e-mail if interested.

    Thank you!

Leave a Reply

Your email address will not be published. Required fields are marked *

Skip to content