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Baby Aiden: A Story of Perseverence and Motherly Love
Aiden Ross is 7 months old and is a twin.
On August 7th, his and his family’s life changed. Warrior momma Katy noticed Aiden having some weird movements. They went to the doctor and his pediatric specialist sent them to McClain’s Children’s Hospital in Temple for seizures. They were there for 3 days.
The doctor there thought it was seizures. Aiden had an EEG done, blood work and an Echocardiogram. Aside from the blood work, everything came back normal. The neurologist said his health was perfect and dismissed it as just normal baby movement.
But Katy knew there was something wrong with her son. He was 6 months old, couldn’t roll over or even grab toys. They got sent home, though Katy just couldn’t sit and do nothing. She did her own research and she found Mickie’s Miracles.
When she called us, she got in touch directly with our Visionary Founder Kristie Griess.
“She made me feel like I wasn’t alone. She went above and beyond and got in touch with Dr. Perry at Cook Children’s Hospital in Fort Worth. Within 2 days we were admitted into Cook Children’s,” says Katy.
At Cook Children’s Dr. Perry re-did an EEG, which also came back normal. After observing Aiden more closely, Dr. Perry discovered that his autonomic nervous system wasn’t developing the way it should be. Katy and Aiden got sent home.
Shortly after, they got set up with ECI physical therapy. Another one of Aiden’s doctors, Dr. David, felt like it was necessary to do an MRI. The MRI also came back normal.
Katy and Aiden had their first at-home physical therapy on September 6th. Aiden’s leg and feet muscles were very weak due to low muscle tone, which also made his shoulder muscles extremely tight. The reality was that the low muscle tone was causing the shaking and constant twisting of his hands and feet.
Katy hopes that they will be able to get an actual diagnosis soon. Their follow up with Cook Children’s is on October 2nd. We have hope for Aiden. We’ve personally witnessed how having access to the right medical support and specialized care can make a difference.
We’ll be updating this story as this inspiring warrior family faces this difficult journey and we humbly ask that you join us in offering support and healing thoughts along the way.Aiden’s right side is weaker than his left. Right now Aiden is scheduled for physical therapy once to twice per week for the next few weeks.
Did Baby Aiden’s story resonate with you? Leave a comment below! We LOVE to hear from our readers. Do you have a story to tell? Contact us!
Mickie’s Miracles is a 501c3 non-profit foundation for the education and awareness of pediatric epilepsy. We run on the donations and support of others, so if you have some time, please consider donating to our cause. Thank you.
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