Celebrating Pediatric Epilepsy Day With Some Reflection
As autumn leaves and rain begin to fall, I’m reflecting on this past summer’s encounters as we celebrate California Pediatric Epilepsy Awareness Day today and Epilepsy Awareness month in November. Stay tuned for opportunities to promote, inspire and contribute. Our foundation is expanding with the same fervor our warrior families demonstrate daily in their fight […]
Baby Mia’s Infantile Spasms Story
After meeting Mickie’s Warrior mom Lea Pasos, our founder and CEO Kristie Griess was ready to use every resource at her disposal to help baby Mia. This is mom Lea and baby Mia’s story. We were so very excited to welcome our second baby girl, Mia, into the world on July 17, 2017. After a […]
Pediatric Epilepsy Day: Resolution Reception, HR-114
Pediatric Epilepsy Day: Resolution Reception, HR-114. Please join ASM Cecilia Aguiar-Curry and Mickie’s Miracles. Monday, August 20th, 5:30 PM, program starts promptly at 6:00 PM
For the Children in Our Midst
Last week, Gabe (my husband) and I had the honor of hearing internationally acclaimed author and lecturer, Marianne Williamson, speak on “how a revolution in consciousness paves the way to both personal and political renewal.” Marianne’s teachings have had a big impact on my life over the past 20 years. She has taken a stand […]
Baby Gabby’s Infantile Spasms Story
There is no proper way to truly introduce our guest for today’s blog, but I will start with saying that Chris is an amazingly dedicated father to his daughter Gabby. After his daughter was diagnosed with infantile spasms, like me, Chris took it upon himself to spread the word so that other parents and caregivers […]
Making Waves
The past two months have been a blur of excitement and change. November marked epilepsy month and the one year anniversary of our non-profit organization. In November, we focused our advocacy efforts on exploring how pediatric epilepsy effects all aspects of a patient’s family. In a series of interviews with my seven-year-old son, Preston, we […]
The Brain Recovery Project
Nicole Gantz Murray serves as the Director of Development for The Brain Recovery Project, a non-profit organization dedicated to helping children reach their full potential after brain surgery to stop seizures.
Baby Dani: Never Forgotten
[vc_row][vc_column][vc_column_text]As Infantile Spams Awareness Week approaches, I am reminded of some very special people whose stories have been imprinted on my heart and fuel our mission to educate parents, medical professionals and legislators on the devastating effects seizures have on the developing brain of a child. I think about baby Dani and her mother, Val, […]
Hope, Healing and Laughter
Kristie on our Contributor: Hilary Harris is a pastor at The Fathers House in Vacaville, Ca. where her husband Rich is also a Worship Pastor. Their lives were changed when their first daughter Jane was born. Jane lives with epilepsy, blindness, immobility and special needs. It is Hilary’s desire to share their story through writing and […]
Power in Partnership
POWER IN PARTNERSHIP In my life, I have worked in the entertainment industry and financial sector, and most recently took a full nose dive into the political arena. During the course of my work, there were always problems that were too big to be solved alone. I witnessed proclamations of partnership, only to be disappointed by […]
