Amelie & Albie’s Adventures
Amelie & Albie’s Adventures are on a mission to try and educate young children and their families about Epilepsy and to help spread awareness. Our Story…. Amelie had her first seizure at just 12 weeks old, and this is when our world got turned upside down. For me this was the first time of witnessing […]
Turning Your Pain into Passion: Advocating for your child in a world you don’t understand
Science has never really been my thing. I was that college student who went to her advisor and asked which major has the lowest science course requirements, and then I struggled to pass that one course. When I finally got the report with that glowing C+, I thought “phew! No more science.” I was a […]
Thankful to be part of the solution — The Power of Parents
I am full of reflection this time of year. On the heels of Epilepsy Awareness Month, while we approach a new year, I am grateful for three years of seizure freedom for my baby girl. I am grateful to a team of doctors, nurses, epileptologists, and neurosurgeons, and a dedicated Epilepsy Monitoring Unit and an […]
Vera Overcoming the Odds
When Vera was born she didn’t cry right away. She peacefully looked around until the nurses cleaned her up, then she wailed. We immediately saw the portwine stain across the right side of her face. We thought it was bruising from the birth. Doctors came in, they took her for a few tests. Her right […]
Managing Mental Health During COVID
The National Alliance on Mental Illness (NAMI) indicates the stigma surrounding mental illness creates an environment of shame, fear, and silence that prevents many people from seeking help and treatment. There is not a single one of us who has not been impacted by COVID-19. And for warrior families caring for a loved one with epilepsy, every […]
H.O.P.E. Covid-19 Micro Grant Recipients: Profiles in Resiliency
We recently awarded four warrior families with the Mickie’s Miracles H.O.P.E. Covid-19 Micro-Grant. This blog series will feature each of their stories as written by their loving, resilient Warrior Mamas. Our first entry highlights Warrior Mama Priscilla Perez’s journey with her daughter, Amaya. Amaya’s story. Amaya Grace Deleon was born on December 24, 2018. A […]
Acts for Asher
Acts for Asher origin: As a momma to a terminally ill baby, I was (naturally) scared of everything. As the end was near, my biggest fear wasn’t him dying – I knew that was inevitable and towards the end, death meant relief from his pain which is all as a mom I wanted for my […]
Things to Do With Your Children During Quarantine
While children are home from school as a result of stay at home orders associated with the COVID-19 pandemic, it’s easy to become stir crazy or default to the use of electronics. That’s why here at Mickie’s Miracles, we’ve curated a list of ideas to help you make the most of your time at home! […]
Inchstones, not Milestones: A Parent’s Journey
The journey began on April 21st, 2018, an unseasonably warm spring day in Western New York. My husband and I started a campfire out in our front yard. We love camping and I was excited to take my four month old out to his first campfire. As a new mom I couldn’t wait to get […]
Kelly Cevantes’ Story
Kelly Cervantes has written a powerful, vulnerable and honest article on the struggles of having anxiety while being in isolation and how Chronic anxiety and depression can impact your life — and we wanted to share it with you. Kelly is the host of the Seizing Life podcast and Inchstone’s blog writer. Her personal stories […]
