Did you know?
Did you know that more people live with epilepsy than with autism spectrum disorders, Parkinson’s disease, multiple sclerosis and cerebral palsy combined? Sadly, most are unaware of how prevalent epilepsy is. I experienced this firsthand soon after Mickie was diagnosed. Close friends would whisper to me that they had epilepsy. They never shared this with others. […]
Walking through the Fear
We just returned from a trip to see Mickie’s Epileptologist, Dr. Mary Zupanc, in Southern California. This trip has become our thing. Like my fellow special needs parents, I’ve become a pro at managing the hospital stays, blood draws, routine and non routine doctor appointments and multiple therapy sessions. The preparation for a clinic visit […]
Always Be Growing
Amazing things have been unfolding since my last post. Over the last few weeks we have started creating our non-profit called Mickie’s Miracles. We have been so blessed with the tremendous amount of support and good wishes we have received. I am excited that we have started the process of selecting our Board of Directors. […]
Let’s Make Magic Happen
There are very few homes in life that you walk into and instantly envision your life and mission so vividly that you must make it a reality. Gabe and I had that experience recently. And last week, we signed the papers for our new home. However, our new home is more than that. We are […]
World RARE Disease Day
Today was World RARE Disease Day and I spent my day at the Capitol with other RARE Disease advocates. It was great to speak with others who have a similar vision. However, while there I realized that our kids deserve so much more. We get to organize at the local level to create a model […]
Everybody Gets to Go!
[vc_row][vc_column][vc_column_text]Society says that the logical step after high school graduation is college. High School juniors and seniors spend countless hours visiting schools so they can choose the best one for them, setting them up for success after graduation. However, for many, college may not be an option for a number of reasons. One of these […]
Limitless Possibilities
The moment Mickie was born, I was flooded with emotions that I had a little girl. It was in that moment I began to imagine what my little doppelganger would be like. All the hopes, dreams and stereotypes of what society and ultimately I believed came to mind. We were going to walk hand in […]
Starting with WHY
Crazy, amazing, hectic and beautiful. These are the adjectives to describe my life. I am a Pediatric Epilepsy and RARE disease advocate. I am also a wife to an amazing man named Gabe. Our love story is magical. He met my childhood best friend on a Southwest Airlines flight and over the next 6 months […]
366 Days
In 366 days, I will turn 40! This will mark the end of one chapter of my life and the beginning of a new. My beautiful family is complete with three little babies and a husband I adore. Our family is firmly rooted in Vacaville, California and I am continuing my journey as a pediatric […]
